The chronic headaches and migraines have taken a toll on my life. I can’t even begin to count the many things I’ve missed and the many ways my day-to-day life has been impacted. And the emotional repercussions have been just as difficult to manage as the physical ones. One of the things that has been really challenging is the fact that my hobbies, those activities that I love and do because they bring me joy and help relieve stress, have been seriously limited by the headaches. I have to be extremely careful about how long I sit and read a book because it will trigger a headache if I read too long. The same thing goes for time spent at the computer which means my ability to blog and do the digital scrapbooking I enjoy has been greatly diminished. And any kind of sewing and quilting has been even more severely limited. I used to be able to sew for hours with no ill effects, but it got to the point where even a short time at the sewing machine would trigger a headache that would take me weeks to break. And I would lose even more time and miss even more events during those weeks. So, as time went by, the amount of time I spent quilting diminished as the activity that once brought me joy gave me only discouragement and depression. And eventually, I just stopped.
And that was my life for quite a few years. Computer time was managed with my eye on the clock to make sure I walked away before I had problems. Audiobooks became a fixture in my life so that I could feed my need for literature without too much eye strain. And projects that I had been so excited about got tucked away so they didn’t gather dust. I was surviving, but I definitely wasn’t thriving.
During all that time, I was constantly working to limit the impact of the headaches as much as possible. I worked with my neurologist. I visited the chiropractor. I worked with a physical therapist for a good six months. Exercise, including plenty of yoga and stretching, became a necessity in my life. Keeping a regular schedule became a priority so that I got enough sleep and never missed meals. Late night events were limited to those that really meant the most. I began doing a lot more online shopping for both delivery and store pick up so I could avoid going into stores where I knew the lighting was problematic for me. I started wearing sunglasses inside all the stores I did visit to limit the possibility of a light triggered migraine. I stayed inside as much as possible to avoid being triggered by heat or super bright sunlight. Basically, my life consisted of a non-stop battle to keep the migraines at bay so that I could feel as well as possible as often as possible.
And then about a year and a half ago, things got much worse. Migraines are often accompanied by dizziness and nausea and the number of days when those kinds of symptoms were occurring escalated dramatically. I was spending whole days, and sometimes up to a week, feeling like garbage due to those kinds of symptoms. I was losing a lot of time and everything that wasn’t a necessity went by the wayside. For women, hormones can be a huge migraine trigger, and one that is completely uncontrollable. I’ve known that since I was in my 30’s. But my neurologist told me that as women age, the worst hormone triggered migraines occur as the regular hormone shifts become less predictable and hormone levels begin to fluctuate dramatically. She told me that things should settle down and likely be better than they have for years once all the unpredictable shifts calm down, but she warned me that it would be a bumpy ride. And it has been. Honestly, I was in survival mode more often than not. There were times when it was all I could do to get through the day without breaking down in tears due to the frustration and discouragement.
But somewhere along the way, I realized that I needed to find some joy, something to offset all the difficulties. And I began to try to focus on what I could do instead of what I couldn’t do. I don’t remember exactly how I ended up there, but I figured out that if I sat at the sewing machine for five minutes, I was ok. Ten was a stretch, but I could do five. And if I did three five-minute rounds, I got fifteen whole minutes a day to work on something. I figured out that those fifteen minutes every day were a bit too much, so I cut back to every other day, and I seemed to do ok with that amount of time. So, bit by tiny little bit, I began to make some progress. And as I did so, I began to regain some of the joy I used to find in creating with fabric. There are still days when I have to fight the discouragement, and those days happen more often than I’d like, but being able to find even just a few minutes of joy has helped me weather the hard days a little bit more easily. And it means that while progress is super slow, there is progress being made.
I have made a quilt for each of my children and while I started Malia’s quilt way back when she was three, I had not completed it due to all these limitations. It was quite a complicated pattern as well, with many tiny pieces and extra steps so that progress was slow, even when I was able to spend more than five minutes at my sewing machine. But as my five minutes at a time routine began to prove manageable, I pulled it back out and factoring in my time limitations, set myself a realistic deadline for getting it done. It has taken me an additional year, but I finally completed Malia’s quilt ahead of my goal of completion by her birthday, which is in August.
When my kids were tiny and were having conflict or misbehaving, rather than telling them they were being naughty or anything like that, because we never wanted them to feel like they were worthless or less important because of their emotions and choices, we told them they needed an attitude adjustment. This time it was my attitude that needed adjusting. I needed to remember to focus on the good, not the bad. To think about what I can do rather than what I can’t. And I needed to learn to internalize that fact that joy can be found every day, even if it is just five minutes at a time.
























